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07/15/26

What the tests missed: a journey through misdiagnosis.

Cogan, Wendy. NPJ Dement.

Collection Topics
Equity, Access, and Timeliness Measurement, Monitoring, and Event Analysis Tests, Screening, and Laboratory Processes
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Summary

Patient and family experiences of the diagnostic process provide valuable insights for improvement. This perspective follows one patient’s long and confusing path to a diagnosis, showing that even advanced brain scans and fluid tests may not give clear answers on their own. The final diagnosis was confirmed only after autopsy, highlighting the need to combine test results with symptom history, caregiver observations, and lived experience.
Read the paper
Cogna W. What the tests missed: a journey through misdiagnosis. NPJ Dement. 2026;2(1):61.