Advancing Diagnosis of Rare Diseases Webinar

About the Event

The Forum on Advancing Diagnostic Excellence will organize and conduct a public virtual webinar to explore ways to improve rare disease diagnosis as well as the patient journey towards a timely and accurate diagnosis. Participants will discuss strategies within areas such as:

• Challenges and barriers faced by patients in their journey toward a timely and accurate diagnosis;
• The role of technologies and diagnostic innovations, including their development, implementation, and broad, inclusive access;
• Health professional education, care coordination, and interdisciplinary teamwork to reduce diagnostic delays;
• Policy and health system-level approaches to strengthening the diagnostic journey for patients with rare disease.  

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