Summary
Summary
Centering patients, families, and communities in diagnostic excellence
UCSF CODEX's inaugural Patient and Community Advisory Board (PCAB) ensures that our core activities are shaped by the people diagnostic care is meant to serve. These activities include sharing information, hosting convenings and conferences, and producing scholarly work. The PCAB is co-created with a patient advocate as co-chair, bringing the patient, family, and caregiver perspectives into CODEX's work from the start.
To advance diagnostic excellence, patient safety work must be an iterative process of collaboration among patients, communities, and healthcare systems. We hope the PCAB will model that partnership.
Our Mission
To partner with patients and community advocates to ensure CODEX work is aligned with best principles of diagnostic excellence, centering the patient, caregiver and community perspective.
Apply or Nominate
We are accepting applications and nominations for PCAB members. If you or someone you know is interested in joining us in advancing this important work with key perspectives, we would love to hear from you!
How the PCAB works
Co-chairs:
- Anjana Sharma, MD, MAS - UCSF CODEX Learning Hub Faculty Lead, Associate Professor in the UCSF Department of Family and Community Medicine
- Phalana Tiller - Vice President of Bendable Labs
Members: 8-12 patients, caregivers, and community-based advocates from across the United States, bringing diverse lived experiences
Meetings: Quarterly Zoom meetings of 1.5-2 hours, with a goal of beginning in November 2026
Role: PCAB members will:
- Aid in strategic CODEX decision-making
- Co-create patient-facing resources to guide the diagnostic journey
- Advise on emerging topics, such as patient use of AI
Who We're Looking For
We welcome members who are new to the field of diagnostic safety as well as those with years of experience. We are prioritizing lived experience in the following areas:
- Publicly insured or receiving care in the safety-net
- The "big three" severe conditions: sepsis, cancer, and cardiovascular disease
- Rare or undiagnosed disease, as a survivor or advocate
- Historically underrepresented racial and ethnic identities
- Urban and rural communities across the US
What Success Looks Like
CODEX products and activities are patient- and community-centered, and the people most affected by diagnostic error help guide how we work.